Wow, can’t believe it’s been over 40 days on medication. After 3 years without medication I didn’t think I’d ever get used to self injecting and having MS. It was easy to ignore that I was sick for the first few years. I had bad times but, they never lasted long and I was too busy being a new dad and working to let a little balance or visual problem stop me. Guess that was the worst thing I could have done. Ignoring MS let the disease progress without delay. Now I take my meds to stay at the level I’m at with the possibility of only slight, if any, improvement. Oh well, I could be worst.
Day 41 – Left Arm
Lots of residual pain on this one. Typical welt. Just a bit more sting than I’m used to on my arm injections.
Day 40 – Left Hip
Minor reaction to the injection. Really tired today, don’t know why and my back is killing me. Hard to walk or stand straight, I don’t think it has anything to do with MS but the doctors found nothing unusual in my lumbar x-rays. All I know is that there has got to be some reason for the excruciating pain in my lower back. Looks like I’ll be going to the doctor again on Monday.
Day 39 – Right Thigh
Damn the medicine hurt today. Don’t know why it stings so bad. Usually it’s this painful in the hips, but it feels like a bee sting today in my thigh.
Had a great day with my son, went to Chuck E Cheese before he went to his mom’s. Sad day because my doggie Trix passed away.
Day 38 – Left Arm
Yeah I skipped rotation today. Didn’t remember the injection yesterday. At least I didn’t inject the same spot two days in a row. The usual injection site reactions, a little milder today but, the medication stung a bit more than usual.
Dad provided a little stress earlier in the day but the Lexapro held on strong. Don’t understand why he gets so grumpy, irritable at the drop of a hat but he IS an old man and the medication has helped me deal. YAY! Busy week ahead.
To paraphrase the Bible, which I know but not well enough to quote exact passages.
“Go as far as you can to the place where I will meet you. I will lead you the rest of the way.”
Day 37 – Belly Injection
Easy shot today. Only bad thing about the injection was watching the Mets while I did it.
Day 36 – Left Hip
Well another dreaded hip injection today on the injection rotation chart. Today was pretty good, normal injection site reaction. Didn’t feel the usual sting with this hip injection. The hip injections usually kill.
Dad came home from the hospital today, looks a little tired and not 100%. I really wish the irrational anger would leave him. Spent the day watching the Mets Encore since he missed all the games while in the hospital. Suddenly gets angry with mom and leaves. I don’t get it. I think he needs to be on some of the meds I’m on.
WHY THE HELL DO THE HIP INJECTIONS HURT SO MUCH?!?!
Day 35 – Left Hip
Damn, my hip feels life I was just run into by a spiked jacket wearing midget at a Lamb Of God show. OWWWWW. The hip injections are always really painful for me, I don’t know why. No site reaction yet. Feels like acid running through my hip, I can still feel the meds.
Oh well. I was going through my mp3 player and decided Killswitch Engage “My Curse” will be my injection theme song for the days I have to shoot in my hips. FML this hurts.
Day 34-Left Arm – I realize today after having an average shot reaction I should be a little more specific with you all about exactly where the shots go. So here we go.
Area 1 – The stomach. The injection site should rotate in an area 2in from the belly button on the left or right and under neath but, no above.
Area 2 – Right Thigh. An area from 4in above the new to 2in below the groin area on the front of the thigh. Not the inside or sides.
Area 3 – Left Thigh. An area from 4in above the new to 2in below the groin area on the front of the thigh. Not the inside or sides.
Area 4 – Left Arm – Area behind the arm 2 in above the elbow and 2in from the shoulder.
Area 5 – Right Arm – Area behind the arm 2 in above the elbow and 2in from the shoulder.
Area 6 – Right Hip – Fleshy area of the upper hip, below the waist.
Area 7 – Left Hip – Fleshy area of the upper hip, below the waist.
The hip is probably the most awkward for me and painful, the sting from the medication is nearly unbearable there also. I must be doing something wrong. Thanks for reading and letting me share.
Day 32- Left Thigh
Just an ordinary shot. Nothing special or out of the ordinary to report.
The day sucked as a whole. I went to the doctor with my father and came home alone. They sent my dad to the hospital, apparently he’d been bleeding internally for who knows how long. Since my father is a stubborn old man, we’ve been having fits telling him to go to the hospital or go see the doctor but, he won’t do anything unless he WANTS to. So we’d been going nuts all weekend, on Saturday the stress had caused my hands and feet to go “pins and needles” on me as if I was having an exacerbation and I spent the day in bed. But I’m positive he is where he needs to be right now and will recover.
To keep the day going bad I was prescribe some new sleep medication, yes MS has affected my sleep and Ambien makes me feel like someone slipped me a date-rape cocktail. And since MS has also affected my ability to cope with stress and the situation with my dad was getting me sick the doctor also upped my dosage of Lexapro. All sounded great until I went to the pharmacy and was told the mandatory HMO I had to enroll in won’t cover ANY of my prescriptions. Meanwhile my medications for Severe Anxiety are about to run out and the labeling specifically warns against stopping abruptly, such as when a shitty HMO bureaucracy tells you that it won’t allow or pay for your medication. So tense and annoyed I had to come home and make calls to file for an exemption to the HMO due to the rarity of Multiple Sclerosis and the specialized and sometimes experimental or off label medication used to treat it. Now I know MS has seen an explosion of information and publicity, especially after Montel Williams went public with his MS, but the reality for us suffering from this autoimmune disease is that in the US we’re only 400,000 people out of the nearly 400 million people in the United States and only about 2 million people total on the planet suffer from MS. This is not the type of exclusive fraternity I had ever wished to be a part of. But we play the hand that’s dealt and we do all try to hold each other up and get awareness out there.
I’ll keep you posted.
Day 32- Right Thigh
Thanks to the Copaxone goodie package, I actually have an injection site chart now. So today called for a Right Thigh Injection. Everything went good. The sting was a little more harsh than usual. Same welt as always, a fair bit of residual pain at the site but, nothing horrible.
Today looks like it’s going to be a great day. Have plans with my friends Mark and Mary whom I haven’t seen in oh…about 13 years. I slept til around 2 today so it’s turning out to be a pretty good day, considering I don’t usually sleep more than 2 or 3 hours. Wooooo, I’ll update when I get back from the night out.