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If you can keep your eyes open for longer then 10 minutes or so at a time and your not being asked if you’re OK every time they are open. I have Multiple Sclerosis, of course I’m OK. It’s only a chronic, incurable, debilitating, auto-immune disease of the Central Nervous System. Everything about knowing that your own body is trying to put a stop to you, is just fucking OK. But, I digress, my day didn’t start off this way.

I woke up 2 hours after I fell asleep and then when I had just started to fall asleep again, my little boy tapped me on the head and said “Daddy??” So that was how my Saturday morning began. Tired as hell, the worse migraine EVER, and 10 50mg Prednisone pills for breakfast. And let’s not even talk about the skyrocketing blood sugar levels of over 450 that come with mass dosing of steroids. But what’s the risk of sugar shock and death when compared to keeping some of your CNS control? And on that end it seems to be working as I have regained strength and control of my left leg exponentially.

Afternoon went well, my friend and the kids came over to spend some time with my little guy, who loved every second of their visit. Unfortunately I couldn’t really keep my eyes open for a lot of it. I’m glad my parents where there to keep them company because, I was a shitty host. 2 hours sleep and the meds did not a great host make. Thankfully, my friends are good friends and stuck around to keep me and the little guy company. They even called my pharmacist and doctors to ask about my elevated blood sugar. Needless to say I stayed home despite the advice and desires of all involved.

I had a good day, despite the set backs, my son had a great day, as always. The Rangers made the playoffs, the Mets won tonight, finally. And my parents stopped trying to get me to go to the hospital. All is well in the world. Now if this fucking headache would just lighten up a little.

Be well, stay well, no regrets.

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One Comment

  1. Hello,
    I have read your blog with interest and find your spirits remarkable. I myself have Diabetes Type 2 since 2002 and although different I am also in ‘for life’. I recently went to Kiev in Ukraine for a stemcell transplant, which the clinic hopes will send the diabetes into remission. So far my sugars are on their way down already.

    I checked their website for MS after reading your blog. Below follows what they say. Perhaps check it out: http://www.emcell.com/en/list_of_diseases/multiple-sclerosis-treatment.htm

    My best regards
    Eyvind
    email: viking(at)global(dot)co(dot)za

    QUOTE:
    Multiple sclerosis treatment with fetal stem cells results in the pronounced positive effect in all cases. The most successful results of the therapy are reported in patients with relapsing-remitting multiple sclerosis (successful rate up to 90%) but in other types of multiple sclerosis patients also report improvement of their condition (successful rate up to 59%).

    The goal of multiple sclerosis treatment is to interrupt the immune aggression against patient’s own nervous system in order to eliminate the main mechanism of disease development. Fetal stem cell transplantation stops disease progression and leads to regression of the neurological symptoms. No relapses were reported during the follow-up period (up to 5 years after the treatment).
    UNQUOTE


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