I was sitting here mourning the fact I hadn’t won the $640million Mega Millions when The Rachel Maddow show reported on parades welcoming home our troops from Iraq.And I realized we haven’t honored the returning troops in NYC. I mean there is a reason it’s called the CANYON OF HEROES. So I started a petition to get an Iraq and Afghanistan ticker tape parade for our troops. http://www.causes.com/causes/660603-clebrate-our-troops join the cause.
I know some will argue we’re still in Afghanistan but, in WW2 we held a victory parade for Europe and then one for victory in Japan. Where’s our patriotic spirit now? Where’s our respect for the sacrifice of the troops even if we aren’t patriotic? MS has taken a lot from me but, it asn’t taken my national pride, and it’s not about pride of the politics of government that run our nation. It’s pride in the people that live and sometimes choose to die for our nation.
Day # almost unbearable to count, I know I’m in the upper 600s and I’m patiently awaiting my Tom and Jerry moment; when I drink a glass of water and watch it come out of me like a sprinkler. It’s become such a daily routine that my 3 year old son yells at me when he’s not allowed to push the button on my Autoject.
I haven’t had an episode since the one night I took two Benadryl and woke up without the use of my legs. I called my mom and dad and struggled to stand up while my toddler lay sleeping in bed. I couldn’t control my urge to urinate while I failed repeatedly to stand up. My dad had needed a break because of his COPD and my son had woken up. I crawled out to the living room, pulled myself up on the couch and, with my son petting my legs with a concerned look on his face, I stood up. I blame that one on the Benadryl, since muscle weakness and loss of balance are the symptoms of taking too much Benadryl.
I’ve met, and attempted to love, some people who in hindsight weren’t worth the time or trouble. Some people don’t appreciate just how much of a gift your time, money, and emotions are when you live with MS, or any other illness, that makes moving and stressing a life or death situation. It seems in the end…
We are all looking for a happily ever after but, most of us only find misery.
I already found my MiSery almost 5 years ago…I don’t have time or energy for the misery you want to bring me. I reserve that energy for my son and my family and my friends, they may bring me stress but, they give me love unconditionally. That’s what we have to focus on, the energy, light, and love that’s in the world for us. We have to take that and carry on.
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Life as a dad with MS isn’t easy, life as a dad with MS can be hard but, I WILL carry my boy into the end zone.
Every hour of every day, someone else is diagnosed with MS. MS defined my 31st birthday. No parties, my present was a diagnosis of multiple sclerosis after a week in the hospital. It may have hit me harder than normal. Within 6 months my mood swings and heat sensitivity had cost me my career. In the next 2 years I’d lose equilibrium, endurance, and see my feelings of worthlessness, and my flawed attempts to make myself feel worth something, take more of my health and my family away from me. I don’t ever want another human being to suffer all I have or worst. I don’t ever want my son to give up, like I first did.That’s why I registered for Walk MS 2012 and that’s why I’m asking you to support my fund raising efforts with a tax-deductible donation.
The National Multiple Sclerosis Society is dedicated to ending the devastating effects of MS but they can’t do it without our help. It’s faster and easier than ever to support this cause that’s so important to me. Simply click on the link at the bottom of this message. If you prefer, you can send your contribution to the address listed below.
Any amount, great or small, helps to make a difference in the lives of people with MS. I appreciate your support and look forward to letting you know how I do.
P.S. If you would like more information about the National Multiple Sclerosis Society, how proceeds from Walk MS are used, or the other ways you can get involved in the fight against MS, please visit nationalmssociety.org.
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