70 injections away from 2 years plus on Copaxone. My neurologist wants to put me on Ampyra and Gilenya but, apparently my docs aren’t communicating. Test that my neuro ordered, my dr. did. yet still haven’t sent the results back to the neuro. Wish they’d make up already. The last thing I need is MS AND my medical support team having a tiff.
All jokes aside, this disease gets me down sometimes. Not just by making parts of my leg numb and the worst times. I went three days last week ignoring all my medication just thinking to myself; “none of it is going to make me better. So why bother?” After just three days I was stiff and aching, everything hurt and I’d gotten out of my funk. No one knows this because I tell everyone I’m fine and I don’t look like I’m falling apart. It just hasn’t changed me on the outside and I don’t think the people around are equipped to handle any other answer than “I’m fine”
Going on 5 years plus and I’m fine. 🙂
I’ve been wondering lately. My Multiple Sclerosis symptoms took a turn for the worse last year and generally keep me from safely doing things like walking without a cane and getting up after sitting for long periods of time like sitting at a bar. I can’t even risk having one drink.
I’ve started to feel more and more alone after my symptoms got worse. Seems that friends have become scarce. Don’t know if they fear me hurting myself while I’m out with them or the old football jinx that you never visit an injured teammate because you don’t want to think of yourself that way.
Feel like I’ve been put in the closet; out of sight out of mind. At least that’s the way I feel. I’ve been left on my own but, I communicate with you. So I’ve been doing pretty well combating isolation.
If you’ve been feeling isolated and alone, due to a chronic illness, please feel free to communicate here and check out this article on ButYouDontLookSick.com. while you’re at it look around the site for forums and other things to help you keep touch with others. It’s very important.