Seems I blew by injection 500, 86 nights ago! Should be 587 but, I’m trying to stretch the last few injections of Copaxone seeing as how they are the last for a while. I’ve got my application out to AssistRX and hopefully I qualify. I don’t know what options i have other than that. I don’t make enough on my disability check to cover my rent, phone, electric, food for myself and a three year-old, a monthly “High-Risk” insurance policy, and the inevitable co-pay. Our esteemed governor has decided that if you make more than $900 monthly on disability, you no longer require medicaid. Does he not know that the median rent in New Jersey is around $1000 a month, unless you live in a subsidized project, which has a 2 year plus waiting list.
I guess he’s too busy embarrassing our state with his Tony Soprano antics, campaigning for Mitt Romney. Funny, Gov.Christie comes out against “The Jersey Shore”, and then acts like a member of the cast every chance he gets. Enough…
Day 597-Back of right arm
Had to ask mom for help tonight with my injection, as I tried my best to keep the shots 2 inches from the previous weeks. I’ve been having issues with body temperature lately. Last night and tonight where 37* outdoors, my thermostat set to 65* with drafty windows and a huge draft from the A/C still in my bedroom window, and I had to place a cold towel on my head and my T-shirt collar was/is moist from sweating. I don’t know wat else to do…open a window? Oh the joys of MS.
That should be the Republican campaign slogan. All we hear about is Paul Ryan’s plan. It’s very easy for an upper class or upper middle class white middle aged person to say let’s cut Medicare and Medicaid. Have him walk in our shoes or roll on our wheels for a day. Hell he wouldn’t last an hour.
Quietly during Obama’s 1st years he basically signed into fast track certain chronic illnesses for Social Security Disability. The Democrat’s Health Care Bill eliminated denying healthcare for pre-existing conditions and dropping coverage because of a developed medical condition. But, the health care law sucks.
10 Multi-billion dollar corporations made massive profits last year and paid little to no tax because of the current tax code. The tax rate DECREASES rather than increases the higher up on the income level you go. What? How does this make? So they’ll take away my small disability check and my parents’ or grandparents’ so they can hand it over to the Upper Class of America?
OPEN YOUR EYES AND SEE THE CLASS WAR! Because the bottom line of all this; is killing the middle-class.
But, this isn’t a political blog. Just one poor guy, fighting a daily struggle against Multiple Sclerosis.
Day 295: Belly
The belly injections always go so easy. Probably because of the pillow I carry on there.
If you’ve read this blog before you’ll remember that the hip injections SUUUUUUCK! Yesterday was no better and today, I wake up with a pretty big bruise right over my right hip injection site. A bit painful and slightly itchy. I can live with it though.
I was feeling pretty good actually. Even went to Target to get some things for my little boy’s Easter basket. Spent 3 hours at Target looking at and picking things out. It was actually a really good day today. Let’s hope they stay that way.
Live well. Be well. No regrets.
Today started out INSANE, Had to drop off the hospital prescription at the pharmacy, called the hospital, my neurologist, my insurance, my 8th grade teacher, and the priest who baptized me, trying to get approval. It seems 1,000mg of prednisone over 2 days and 500mg the next 4 is an excessive amount…normally. Long story short at the end of the day I shelled out $40 bucks from my pocket for the ability to walk. Seems like a fair deal, no?
Other than the clean up from yesterdays hospital extravaganza, the injection went well. I picked up Shea today and really at the end of the day when you get that big hug and kiss from your child before he lays down to sleep and you get to see their peaceful little faces…THAT’S REALLY ALL THAT MATTERS.
Be well, stay well, no regrets.
Today was my second day on Copaxone therapy for my Multiple Sclerosis. I was diagnosed 3 years ago and lost my job and my insurance. After a long uphill journey I finally achieved the montain top that people with chronic illnesses and no money, like me, call US State Medicaid. YES!!!
My medicaid allowed me to finally get my med. And boy was I surprised at the $12000.00 prescription bill they covered. Insane how expensive the drugs that MS survivors need to function are. I’m glad I could get them.
The shots list a wide array of side effects and reactions, which I have been lucky enough not to have experienced yet. Day one was a little stinging at the injection site and some redness that lasted about 15 minutes. Today was a bright red mark and stinging. A little ice compress, Advil, and Neosporin took care of that in about 30 minutes. I think the reaction had to do with me injecting the last bit of medicine too quickly.
Stay tuned to the continuing journey. Ever since my fiancee left me about a month ago, blogging and the internet are my sole source of comfort and companionship. BE WELL.